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Hi everyone, my name is Stephanie. I am 54 yrs old and recen

Hi everyone, my name is Stephanie. I am 54 yrs old and recently dx with diffuse large B-cell lymphoma primary site base of tongue and one other lymph node .Stage 2. I had 3 rounds of R-Chop and will being another PET to see if it is working to shrink tumor. It's my understanding that base of tongue is rare site. I'm concerned about radiating this area bec where it's located. Do any of you know someone that's had it in this area of the mouth before?

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[2120]
Apr 20, 2017

The Leukemia&lymphoma Society has program to match patients up with same kind of NHL with other patients.I would tell them what kind of NHL that was founded in your mouth &ask if they could find another patient with same DX. I think there numberis 877-557-2672. MSKCC does also have same program for their patients &were you being TX my also have similar program. I did sent PM to you also.

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[70]
Apr 20, 2017

Thanks for the information.!

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[70]
Apr 22, 2017

DLA, I did not get any information like phone number to call. Mine is 225-284-6170 if you feel like talking.

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