Hi, I'm new to this site. I wanted to find out if anyone

[40]

Hi,
I'm new to this site.
I wanted to find out if anyone is suffering from eczema herpeticum, which was not diagnosed promptly?
Four years ago I contracted this and I am still suffering significantly from the effects. I wanted to find out what others have found helpful in similar situations to myself.
Thanks, Elena.

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 3
[167510]
Mar 19

Hi elena. Not heatd of it. How does it present itself and where abouts on your body but I expect it is still related to your immune system and does taking antivirals help. How are you actually diagnosed with it

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[40]
Mar 20

@lisajd
Hi,
I was diagnosed by a private skin specialist initially after having no luck with my own gP. I've also had swabs and a skin biopsy to confirm it as it presents itself in a somewhat bafling way to the professionals in Guy's hospital.
I contracted it at work through my eczema from a child with chicken pox. It presents itself init ally in chicken pox stype blisters which are itchy. These then turn into an anger red, painful and swollen mass which cover my arms, neck, chest predominantly but to a lesser extent overy the rest of my body too. I get nerve pain, fever, fatigue, swollen lymph nodes and swollen thyroid amongst other symptoms.
I am treated with Acyclovir. During flare ups an 800mg dose 5x daily. Or a statement dose of 400mg X2 daily. It severely affects my confidence and way on life as it's so painful and at times debilitating.
I was hoping to find someone who has a similar experience to me for general moral support as it can be quite lonEly and depressing trying to put on a brave face at times for those who love you!

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[167510]
Mar 20

Hopefully the medd etc keep it at bay. Have you looked at your diet etc too.

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