Hi everyone! I am 16 years old and two years ago I had a ser

Hi everyone! I am 16 years old and two years ago I had a serious injury from running that soon lead to chronic pain. I have CRPS which is a chronic/life long condition with no treatment. It's been really hard lately and I'm at such a young age to have chronic pain and I really need someone to talk to, someone who understands the kind of pain that I go through. It would mean so much to me!

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MarWin's picture
[7455]
Jul 17

Hi @kathleenanne19. My first question(s) would be were your born this way? If so, how did the pain affect you as an infant, toddler, youngster, and teen?

If you didn't suffer from CRPS until later in life its most likely something that you can treat. Having said that, I don't know what your injury was and its possible it was something so serious that it altered your bone structure. But I don't really know for sure. From what I read on CRPS is that its a nervous system dysfunction. Since the root of our nervous system is protected by our spine and other bones its not really out of the question to think maybe our bones are no longer aligned and therefore putting pressure on the nerves. You with me? Any bit of pressure or impingement can cause the nerves, muscles, and bones to not work properly together. Since the muscles are what hold the bones in alignment then its not out of the question to look to the muscles being imbalanced.

Since you are an athlete I'd like to challenge you to evaluate your posture and see if you can spot any dysfunctions. I know you are competitive by nature so hopefully you accept! Google the term Posture Condition 1, 2, or 3. Select Images. Hopefully the first couple will give you images of these posture conditions and you can try to self evaluate. I am a runner too, and I have 1 and 2.

Let me know what you find out. Welcome to the forum. So glad you are here!

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[20]
Jul 18

@MarWin no, I wasn't born with it. back in 2015 I was running during a race with my cross country team and felt this sudden pain in my left leg but being a runner, I thought it was just shin splints or a cramp. but, days and weeks went by and I still felt this dull and aching pain and I couldn't figure out what was happening. So, I went to my first doctor who told me I had a stress fracture in my left tibia so I was forced to stop running for 6-8 weeks. And as those weeks went by, the pain in my left leg never went away. After multiple x-rays and MRI's my doctor confirmed that my stress fracture was completely healed and that I shouldn't be feeling pain but I was anyways.

During all of this, I went to 9 different doctors in almost 1 whole year and it was doctor number nine who told me that I had permanent nerve damage leading to CRPS. I've tried multiple treatments with different doctors but nothing worked, not even a cortisone injection. So, I came to a decision to stop all treatments and just live. I chose to live through the pain because this condition can't be cured.

Thank you for what you said, I will take it all into consideration! I've been dealing with this for a while now and I thought it would get easier but I guess I was wrong. I'm only a 16 year old girl in high school and I just need things to be easier.

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MarWin's picture
[7455]
Jul 19

@kathleenanne19 I'm with you. To be clear, is the pain most severe in the left leg? If so, where? Anytime I think of chronic leg pain I think sciatica nerve impingement. It’s simply possible the fracture was a catalyst for the nerve pain. Meaning the sudden jarring could have knocked a vertebral disc out, or cause muscle stress elsewhere like the piriformis. When the pain of the fracture was done, then the nerve impingement pain surfaces. If you told the doctors where it hurts most, then they probably put too much focus on that specific site rather than looking elsewhere. If you truly do have permanent nerve damage please do not hesitate to get a second and third opinion.

Let me ask you, does the pain affect your motor skills, or does it simply make you not want to do anything? In other words, if there were no pain would you be able to do normal things? Can you go into more detail about the pain? Cramping, Electric Pulse, Numb, Sensitivity to touch, Pins and Needles, Constant or Come and Go? Is it only centralized to your lower leg or does it radiate up to the low back and down to the toes?

Back to the fracture. I’m one to believe in that the bone is fine, but the load bearing joints that are connected to that bone are out of alignment. Therefore putting added stress on the bone itself. This is also a bug reason for joint pain. Misalignments, not bad joints are what cause the real pain. This is why I wanted you to do the self-evaluation. Let me know when you do that. If we find out it is sciatica I could give you the same routine I used to get rid of it.

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