Hi, I haven't posted in a while but I really feel like I nee

Hi, I haven't posted in a while but I really feel like I need a vent so here we go...

For anyone who has not read my previous posts I have a number of health issues (like many of you) but what brought me to this site was severe pain I had been experiencing that no one could figure out why.

Since February this year I have been experiencing a sharp pain that runs from my neck into my face, causing ONLY the left side of my face to swell and my left eye to water from the pain (people always think I'm just crying out of one eye) it can be so bad that my jaw locks and I can hardly talk. I know many people suffer with chronic pain more than just months but years but this is just my story. First my specialist took me off my oestrogen patches thinking that what was causing what they described as a "migraine" that only affected the left side of my face. 3 weeks later the pain was still there i took 9 panadol a day and that would hardly numb the pain. I had to stop working and I could hardly go out, I woke up with the pain and went to sleep with the pain. It seemed no matter what I did it was there the scale of the pain fluctuated but it never went away. To cut a long story short they decided it wasn't the oestrogen they thought i had to much fluid in my head and wanted to do a spinal tap (by this point I was always in pain I didn't care) but after 2 MRI's they no longer believed that was the case either. I know many are probably thinking did they give you something for the pain? Yes they did but if I decided to take it I either slept the week away or would be nauseous and dizzy. I've lost 10kg from just not being able to eat with the pain and I was already small woman at 53kg. I tried 7 weeks of acupuncture and massages as I had just "tight muscles" my physio would say! Finally my doctor placed me on migraine prevention and a strong pain killer that I could take daily. Slowly it improved but would never go away, months later I'm off the migraine prevention (could barely keep food down on it) and the pain is better. It's gone from being constant to coming waves almost like spasms one day I might have 3 the next 7. Today I found out all the months of tears, tests, money, heat packs, pain killers, and doctors that my osteoperosis is so bad that the entire time i have had a small fracture in my neck that had then also some how been pinching a nerve.

I got the call from my doctor a few hours ago showing on the X-rays what has been causing my pain all along. It wasn't the medication (migraine prevention and others) making it better the bone was slowly healing. She's sent me a script for a nerve blocker but all I can do is to continue to rest and let it heal.

My point of my extremely ...LONG post is I can't stop crying. It's not in my head the pain was real those moments of lying on the floor of my car because I couldn't drive home i was in so much pain were all because of this.

Has anyone ever had anything similar? I know people can experience chronic pain for years and I just 6 months but I CANT STOP CRYING! I feel relived and sad at the same time

Thanks for letting me vent!

#whycantistopcrying

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[22225]
Jul 15

@Cavaliere HEY CAV...YOU ARE SO RIGHT...I AM IN CANADA....BUT YES THEY ALL WANT $$ FROMUS JUS FOR A LITTLE RELIEF...I HAVE SCOLIOSIS THAT IS RAVAGING MY BODY AT 52..I HAD SURGERY ALREADY....I REFUSE ALL PAIN MEDS....I SEE A CHIRO...THEY UNDERSTAND THE SPINE....US DOING THE 'BEST' IS ON US...WHY DON'T THEY HELP US WITH ALL THIS SO-CALLED 'RESEARCH' THEY ARE SUPOSSED TO BE DOING....HOPE YOU ARE FEELING OK..CAV. XO LIZ.

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Cavaliere's picture
[1795]
Jul 16

My pain levels are unpredictable, and sometimes the slightest things will aggravate it. I try to avoid the opiates, but sometimes I can't function without them.

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Cavaliere's picture
[1795]
Jul 16

Often I can get by using Ibuprofen, or even a double dose of aspirin. But I have to take antacid or acid reducer at the same time, otherwise I get it in my stomach. There‚Äč is one anti inflammatory that I can't take and carry a card alert, Toridol. In the past , every few years I'd get headaches from hell that send me to the emergency room for a morphine drip. Haven't had any of those since 2014

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