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Well, my appointment was moved up to today. I don't know wh

BubbaP's picture
[205]

Well, my appointment was moved up to today. I don't know what to do. My meds are about to change from 3 fentanyl patches every 3 days (plus 6 8mg hydromorphone daily) to buprenorphine with maybe a couple of hydromorphone. This is AFTER a full year of reducing my pain medications to the bare minimums and still get relief. My doctor told me it would be about 10-15 times LESS pain medication than this. I am about to lose it. After the reduction in meds, I have been reduced to tears and sleepless nights again fairly regularly, although I still consider myself to have a good quality of life. This has been going on even with the fairly large doses of the medication I take for depression, originally prescribed to help keep me from crying daily! What is going to happen later tonight when that medication has been reduced by factors of 10 or 15? I am absolutely stupified and literally worried sick. I'll be trading my existing medications with known but manageable (for me) side effects, to a new medication much less powerful with known negative side effects, which can be especially worsened with long-term use. I finally have reached the stage in my life where I am genuinely disabled. My scoliosis prevents me from standing erect or lying flat, so I can't walk anymore -- it's all I can do (with crutches and a walker) to move around the ground floor of my home (and once monthly, somehow make it out to my car with my wife's help for my monthly appointments with my pain management specialist). The finished basement and upstairs bedrooms (and my beloved library) have been denied to me for years now. The illnesses accompanying my physical degeneration make things much worse -- bad enough now that physical therapy-type treatments actually are more harmful than helpful. Anything involving travel basically is out, and my wife and I can't afford to have someone (if there were anyone nearby in the first place) come to my home to provide such treatment. I already practice meditation (biofeedback, relaxation exercises, etc.), use aspirin and nutritional supplements, use music and lots of other things as distractions to pain, and do any and everything else I can to improve my situation. I really can't imagine what my life is going to be like now without the pain medication that at least keeps me cheerful. I thought, with all the changes to laws now that this opiate-crisis has reached knee-jerk response levels, that someone else here already was dealing with this and might give me some pointers. I haven't even slept yet, and I'm supposed to make an hour (one-way) car trip to my doctor in about 6 hours. I'm having a pretty rough time with this. I know I only can do what I'm told to do and try to make the best of it, but I just can't see how this could be anything but detrimental for me now, in this stage of my life-long battle with debilitating injury and disease. I am terrified.

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[2540]
Feb 9

@BubbaP, have you read Drug Dealer, MD? I just read it and I was an RN during the time when they were prescribing so many pain meds. I was required to take an 8 hour continuing education class on why you should give pain meds freely. All that was based on a study of 10 hospital patients, and all the things I learned about pain meds was wrong! I take pain meds, but I never went over 30mg MS Contin three times a day with 10/325 percoset for breakthrough. It is really incredible how doctors and patients were duped by Big Pharma.

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BubbaP's picture
[205]
Feb 17

Don't get me started on Big Pharma, unscrupulous insurance practices and quack doctors! ;-) I worked at a hospital for 10 years, and between that and my own experiences as a patient, I've seen all sorts of nightmares (and great success) in my 40+ years of dealing with chronic pain. All in all, I consider myself very lucky to be where I am at this stage of my life. Things are rough now, but I'm doing okay, for the most part. I know I couldn't appreciate my doctor and his staff more. Even though my health has degenerated to its worst point in all these years, I can thank God for having led me to what I consider to be the best of the best in doctors and treatment centers. It's absolutely mind-boggling what he (and everyone at his practice) is forced to do to continue treating patients like me. Consequently, many doctors won't even try anymore, and many pain management centers have closed their doors altogether (with patients left in unbearable pain or resorting to street drugs and/or suicide). What a mess! I can only hope things won't get any worse for those of us that genuinely need help.

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[2540]
Feb 18

I also have a wonderful pain doc, and a great pain psychologist who I no longer see. We are two lucky individuals! I see so many people struggling, and getting no help. Doctors would tell me that patients who claimed to have a pain level over 10 were drug seeking, since 10 is the highest pain. When they asked for pain meds, they were drug seeking, when they used to be addicts, but were sober for more than 20 years they were drug seeking. I responded, No ****, they are seeking pain relief.

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