concerned mother of a 13 year old with a 32 degree curvature
Hi my name is liset my daughter is 13 years old, and was diagnosed with scoliosis at age 12 on sep we went in for her yearly physical and thats when it all began. It was as 15 degrees she referred me to an orthopedic and he saw me every 2 months when it got to 18 degrees all i would hear from this doctor was not to worry her spine is almost done growing, by looking at the xrays they took, then he referred me to another specialist this one also saw me every 2 month till when she got to 22 degrees hes like ill see you in four months it shouldnt get any worse than that, since they are doctors ,specialist i felt at easy, so on october 5th we went in for her 4 month check up, but within those four months i went to go get a second opinion, and this specialist was like if this was my daughter i wouldnt brace her, she should be done growing soon. So on her 4 month check up doctor was like its at 30 degrees, I wanted to scream,and cry because why wouldnt they brace her because look how bad it good, so this specialist was like ok im referring her to childrens hospital , i was like now you are why didnt you do this 4 months ago, and his answer was like it didnt look like it was gonna progress. Her appt. at childrens hosp. is on dec 7th. Im scared surgery is not something i want for my baby girl. Help anybody
Sorry I wouldn't be here on much lately but I can just give you some information. I to have severe scoliosis and haven't had surgery, I'm almost 19 years old. My experience with doctors is similar to yours, I first had pain around age 13 or 14 like your daughter and that's when my scoliosis must have started. My doctors never even found out I had scoliosis untill 17. By 16 I realized exercise kept the pain down but honestly untill 17 I didn't know what scoliosis was. Contrary to your belief, I don't thnk bracing would be good. See, Your body learns to adapt to things like scoliosis. If you wear a brace then the muscles conforming to your back aren't being used therefore they will be weak AND the second u take off that brace, it'll feel weird. Message me if u have other ?'s.
First, let me say that even if your daughter had been braced, there is no way to know if it would have stopped the curve from progressing. Second, orthos usually don't do surgery on a 30 degree curve unless your daughter is a canidate for VBS or VBT or there is something else going on. And third, please come back and tell us what her doctor at the Children's Hospital told you. Finally, I am too excited not to share our news.
I was told that if this new physical therapy we were trying was going to work for our child’s scoliosis, we would know within the first 4 months. –Four months later, her (moderate)curve had stopped getting worse! I am a mom, not a medical professional, so I can’t tell you why it works; just that it worked AND is still working for our child.
We were told she had scoliosis and during the watch & wait phase had to get an x-ray every 6 months. Later, her orthopedic surgeon prescribed a brace, but by that time our daughter was finally tall enough to begin using progressive resistance torso rotation strength training, so she did that instead. Though her main curve had progressed 16 degrees between the prior set of x-rays, her curve completely stopped progressing after she began strength training on the MedX Core Torso Rotation and has remained stable for a total of 22 months based on her orthopedic surgeon’s x-rays. (Her curves remain T31 and L28 degrees.)
My daughter was unable to fit into the equipment at the beginning of her growth spurt and due to her high rate of progression (16 degrees) and low level of maturation (Tanner: 2, Risser: 0, Triradiate Cartledge: open, Menarche: 0 months) was expected to require surgery. She was petite and therefore still did not fit into the exercise equipment well even when she did start using it. My husband and I contacted the MedX Corporation and asked them to make some changes so the equipment would fit her better. It turns out the modifications were simple and now my 13yro daughter fits into the equipment perfectly! The company told us they will make these alterations available on their new equipment and as a retrofit for those who already own the unit. Parents, we no longer have to wait for our kids to grow into the MedX Core Torso Rotation machine!!!
If I understand it correctly, this type of physical therapy works best for someone with AIS and a thoracic or thoracolumbar curve, Risser 0-III (maybe IV too), mild to moderate Cobb angle, with no other medical concerns (r/o red flags raised by a left or high thoracic curve, Chiari Malformation, & Syringomyelia, etc.), who is able to workout 2x a week until strength on each side of the spine is fairly equal (several months), and then 1x a week until maturation (several years.) You would have to ask your doctor to make sure I have the info right!
My daughter’s program is a little different than either Dr. Mooney’s or Dr. McIntire’s. She warms up, completes stretches & exercises chosen by her physical therapist, uses the MedX Core Torso Rotation machine & BackStrong VARC, and then finishes with a large icepack for 15 minutes.
The core of the program takes less than 20 minutes, adding the “extras” to the core equals a little more than an hour. Either way, our family decided if it worked, physical therapy 1x or 2x a week was better than our child spending 22-23 hours a day, 7 days a week in a brace.
Keep in mind I am reporting my opinions and the results of my child and not presuming to know what is best for your child.
The next Dallas monthly Scoliosis Support Group meeting is Mar 6, 2013 from 7-8pm in “The View” Conference Room at 1600 Coit Rd, Plano, TX 75075 (The Medical Center of Plano hospital campus).
Enter main entrance to Building One, turn left down the hallway past the new restrooms. “The View” will be on your left. Parking is free.
Barbara Baker will discuss Posture Alignment therapy, a unique and effective program for musculoskeletal pain & imbalance.
Come meet others who have either had surgery or are considering surgery. All ages welcome.
Please RSVP if you plan on attending by leaving a message at 214-473-7240, or emailing email@example.com