My 2 1/2 yr old son possibly has Asperger's or PDD-NOS

Im new to SupportGroups.com.

I believe my son has Asperger or PDD-NOS. He hasn't officially been diagnosed. We have been going through Early Intervention since May 2012 for Speech Therapy. At that time an OT did evaluate him but didn't think he qualified. Its October and I have requested he be evaluated again. He is also in Speech therapy through our local hospital. He has been in that since March 2012. So he receives speech twice a week. His speech has improved a bit. Though he is not nearly where he should be for other children his age.

He displays alot of the other symptoms of Asperger's or PDD-NOS.
Problem is most of the time he only displays them at home. He can be real reserved around strangers. He behaves fairly well with his speech therapists.

His tantrums are becoming more frequent as the days pass. He harms himself and makes himself throw up during these fits. They usually last 30 minutes or more. He is very jealous of his 11 month old brother. He is physically mean to him. He once pushed him down face first and my 11 month old must of bit his tongue. He was gushing blood for 15 minutes. He is 2 1/2, very strong and big boy. He turns into the Incredible Hulk. He has an anxiety/nervous problem. He constantly picks at his fingers and bites all his finger nails. I have put stuff on his nails, so he wont bite them. This just irritates him more, because he doesn't like the taste. He freaks out and starts clawing at his face.

I want to share a little back story and about our family:

Between my husband and I, we have 4 children. We each have a daughter from a previous marriage. 13 yr old and 11 year old. The 11 year old is mine. She too had some developmental delays. Speech issues. She recently was diagnosed as bi-polar. My husband is not the biological father of my 2 1/2 year old but has been helping raise him since he was 9 months old. He plans to adopt him. My son's real father is not involved at all in his life and never has been. My husband and I have 11 month old son together.

When I was pregnant with my 2 1/2 year old, there really wasnt any complications. They did try inducing me 2 times. First time didnt work. Week later, 3 days after my due date they tried again. I ended up having to have a c-section because his heart rate was dropping and my blood pressure was going up. He was 9lbs, 14 oz. My biggest child. Other 2 were, 6lbs, 14 oz and 8 lbs,7 oz. He was a happy baby. Though I noticed he didnt "coo" or make musch noise. He physically was far more advanced. Crawled early, cruised around furniture pretty early, and was walking by his first birthday. Noticed his communication was lacking. His first word was "more" at age 13 months. He didnt start saying "Dada and Mama" until around 20 months. For a while he would wake up every night at 3am in screaming fits. That was from 10 months to about 15 months.

He now can say about 70 words, but doesn't always say correctly. He can use a few 2 words together. Can say maybe a couple 3 words together. He repeats alot of words over and over. He likes to be held or touched on his terms only. When putting on his shoes, the left one always has to be put on first. For about a year and a half, he constantly would take his shoes off while in the car. He didnt want them on. That has been better.But he hates socks and most of the time will not wear them. We have landscaping rocks in our yard and he has gone out there barefoot. Walks right on them with no care. Doesn't hurt his feet. We call him B-Rub sometimes. Short for Barney Rubble. he eats well, no issue there. He is highly intelligent though. He understands everything you tell him. He learns to do physical things pretty quickly. he is pretty social with kids his age and even older kids. Adults he is sometimes very shy and fearful with. My sister took him to a family party that I couldnt attend. We dont see that family too often. Anyways, they were there for 4 hours and he wouldnt leave my sister's side. She had to hold him most of the time.

We went on vacation about three weeks ago. The boys stayed with my Aunt for a week. She swore he was great for her, no problems. Not sure if she was just telling me that so I wouldn't worry.

His biological father has other children. From what I know, he has a couple other sons that have problems as well.

I know I am writing a novel here. I am just looking for some support. Other people that are experiencing the same. Some advice. The emotional strain its putting on not just myself but our family. He is better with my husband. My husband was on disability for 8 months but now just went back to work. Im not sure if my 2 1/2 year old is upset by this and is acting up from it. I own my own business and my sons come to work with me. Just have alot going on in our family. My youngest was seeing a physical therapist for torticolis. He is now doing better and doesn't have to go. Therapist after therapist for each child, its alot to deal with.
I know we will probably be seeing therapist for a long time with him.

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CKarma's picture
[172555]
Oct 22

I am not in this group, but I wanted to say hello and welcome you to the site. It really does seem like you are doing all the right things for your son in terms of therapy and extra help. My friend, who has a son with aspergers, put her child on a gluten free diet and follows the Dan Protocol which helped him immensely in terms of behaviour.

So glad you found the site!

Hugs-
CK

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[50]
Oct 29

Hi! You're doing great with your child by trying to procure services... That process of getting a diagnosis, and help can be maddening sometimes! I'd also like to validate you're hard work- raising these children can be absolutely draining, physically and emotionally- I have two, so I know!!! and it doesn't help when you keep getting denied the help you need... If you're like me, you start to wonder if you're nuts... I'm here to tell you you aren't and to follow your heart! He's your child, and you know him best! We went through the same thing... Oh she's just hyper, it's just a phase, so what she doesn't like socks and shoes, so she's a little checked out... What a relief when we finally got confirmation!!!

What you are describing, minus the aggression, is almost verbatim my Asperger's daughter's (9) presentation. She was diagnosed with High Functioning Autism @ 4 though it was noted that it was very mild, and presentation would likely, by the time she was older, be more relevant of Asperger's. My youngest daughter- who doesn't yet have an AS diagnosis, but has bad OCD, anxiety, and behavioral tics (think tourette's), was our self injurious and aggressive child. She's more of the tantrum thrower, though, now that she's on meds, things are better. The older one is on meds too- that was a hard decision too, but made our lives so much better- her's too!

Re: the speech therapy- give it time! It's sometimes slow, but will help in the long run!

Now, I'm not qualified to make any diagnoses- let me just put that disclaimer in... however, I'm in grad school for counseling, and am well studied on mental illness, and particularly Autism Spectrum and similar disorders. Sounds, at the very least, like sensory processing disorder, but like I said, AS is definitely a possibility too! So is OCD, anxiety.. OT would be very beneficial on a lot of fronts... Why was he denied the first time? Are you going through state or private services- it can make a difference in the quality of care and availability... We were fortunate to have private insurance throu my husbands work, so we found a private practitioner but she also accepted state health insurance... So depending on your situation, you might want to check around. Sometimes, unfortunately, atleast where I live, EI services are often so full and have such long waiting lists, that higher functioning kids get turned down simply because they don't have room.

I'm happy to chat more in detail with you about anything if you'd like... My main focus in grad school is helping families like you get through the process of diagnosis and service procurement, as well as support on the emotional front! I've been there, so can empathize with you completely! Good luck!

Denise

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[30]
Oct 30

Thank you so much for the responses. It provides some comfort hearing from other people on this matter. Before we were on state aid. Now we are on my husband's insurance through work. Thank goodness because it was very difficult to find care on state insurance and long waiting lists. My son goes through EI and private therapy. An OT from EI is scheduled to come out next week for evaluation. His speech has improved alot since being in therapy. I have read about different diets to try and I am looking into that some more.

He was denied OT because he functions well and listens to most directions given. Like I said before, he is totally different with new people. Out in public most of the time he is shy and reserved. At home its a whole different story. He is currently throwing a tantrum now, so I must go. I will write more later. Thank you again for the support.

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