Grey Zone Lymphoma (a cross between Non-Hodgkins and Hodgkins)

I am 50 years old and have been diagnosed with Mediastinal Grey Zone cancer (Has characteristics of both Hodgkins and Non-Hodgkins) back in March of 08. I had 5 biopsies - 1 Bronc scope, 1 needle, 1 bone marrow and 2 surgeries before they figured out what it was.. I started treatment the first week in April 08 using MACOP (Methotrexate, Adriamycin, Cytoxan, Vincristine, Bleomycin, and Prednisone) by the advice of MD Anderson. The treatment was once a week for 12 weeks. I finished in late June 08. I also finished 17 radiation treatments. I have had 4 PET Scans since and have been completely clean of cancer. Needless to say, my wife and I’s feet haven't touched the ground! But our knees certainly have. I would be quick to tell you this has been frightening, dark and very difficult and yet the most amazing blessing of our lives. And both of us are so very excited to see what God has in store for us now . My wife is a breast cancer survivor for 10 years(yea God).

Mark 11:24 Therefore I say to you, whatever things you ask when you pray, believe that you receive them, and you will have them...

My wife and I prayed for healing and we received..

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Comments

Ross's picture

skbjerke:
Welcome to supportgroups.com and congratulations on beating grey zone lymphoma! For those unfamiliar with grey zone lymphoma (GZL), it is as you describe it- a lymphoma that falls into a 'grey area' between NHL and classical HL, and it have all sorts of other conflicting characteristics. Consequently it can be extremely difficult to diagnose and therefore treat. So your experience and wisdom are more than welcome here, and once again, congratulations!

Ross

nana752003's picture

My goodness you certainly are an insperation, a much needed voice of hope that there is light at the end of this tunnel.
Thank you for your post and I hope you decide to share more of your story in the future.

people will forget what you said, they will forget what you did, but they will never forget how you made them feel...God Bless
Linda

MAC85's picture

I also have had Mediastinal Grey Zone Lymphoma and was diagnosed October 2008. From what you wrote i had a simular treatment schedule including Mabthera. My last PET scan early this year revealed i was also cancer free. YAY. Im now pregnant expecting my second child and im very excited about our future. Well done !!!!!

jetseac's picture

I am 5 years in remission from T cell Lymphoma with help from family , prayers and an excellent medical team at Sloan-Ketting, I offer prayers for all who have any cancer,my next scan is in July,I just learned my cousin has Grey zone Im encouraged by this blog, I had stem cell replacement, full body Radition, and tons of Chemo

donette26's picture

Hi Jetseac:
What kind of T-cell lymphoma did you have and was it PBSC transplant did you have?
I am doing a transplant the end of this month and would love some more information.
Thanks,
Donette

jl88's picture

hi jetseac. u live near burlington? sloan-kettering did my second biopsy. i was treated at dartmouth-norris cotton cancer center. i'm 32 yrs old and i was diagnosed with stage 3 gray zone (aggressive large diffuse B cell non-hodgkinl/classical hodgkin) lymphoma at 31. my 21 yr. old cousin just finished her stem cell transplant in massachusetts 3 weeks ago. shes got stage 4 hodgkin. my mediastinal tumor is in-operable but the chemo R-CHOP stopped the cells from reproducing and 28 days straight of radiation shrunk it a bit. i've been in remission since jan. 29th 2011. i'm def dealing with alot of side effects from treatments which is actually harder for me than active treatments were. anyone else have any residual effects from their treatments?

Eric1971's picture

I am also a survivor of Mediastinal Grey-Zone Lymphoma. I had my last scan in February 2013 and glad to say i am still in remission. I was diagnosed in Oct. 09' and my new birthday is Sept. 17, 2010. I go for scans every 6 months and was treated with R-CHOP plus 25 days worth of radiation. GOD has certainly been good. Would love to chat with u and share highs and lows.

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