SAVELLA

I HAVE BEEN ON SAVELLA NOW FOR A COUPLE OF MONTHS, HAS ANYONE TRIED THIS AND HAD ANY LUCK WITH THIS NEW DRUG?

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bailey1957's picture

hi, i have problems sleeping too. i'm a walking zombie most nights. One reason is my feet and leg hurt to the point of excruciating OUCH. I can't take any medicine like lyrica or anything. i have alot of side effects.
I watch alot of tv in bed or i roam my livingroom while others are snug asleep.I hope that you get your sleep really soon. Bailey1957

fibronotme's picture

are you on meds for rls?

acceptance's picture

I tried Savella and had thoughts of suicide so I stopped it immediately. Lyrica made me feel drunk/hungover and couldn't concentrate at work. I also am up most nights due to leg pain and restless leg syndrome. One thing the doctor gave me to take (because I have chronic migraines as well), is to take a 5mg valium before I go to bed. Most of the time it works because it relaxes my body, if it is really bad I will take a trazadone and that usually takes care of it. The bad part is if I wake up at 2 or 3 I can't take the trazadone because then I can't function at work.

acceptance

enabler6's picture

I only take Lyrica at night and try to use the lowest dose possible, I had a hangover affect once, took a pill in the morning before work, took one the night before and it was awful. Perhaps a lower dose of Lyrica would help. I take Nortriptyline for foot and leg pain, it works great but not good to stop taking it, doctor wanted me to lower my doses for better memory but I began to hurt so bad in my legs and feet and become so depressed went back up to my normal dose. I also had cortisone shot for legs worked great the shot hurt like hell for 3 days but I was pain free for about 9 months, was told I had burcitis(sp?) in my hips.

Feeling_Alone's picture

Yes, I was on it for 3 months and had quite a difference in pain on a daily basis. Had to go off if because I had to increase my Zoloft and it conflicted with the medicine. I basically had to make a choice to be in pain or deppressed, I chose pain, because I have a family that I need to try and hold it together for, I can't be falling apart everyday. I am hoping to go back on it soon.

Adora

enabler6's picture

I use Lexapro for depression with my lyrica, nortryptiline for pain but also despression, cymbalta made me sick to my stomach

saville's picture

I am trying to get a hold of leelu1959 to talk with him about Savella. I am on this drug and it has done wonders for the stiffness, soreness in my upper body. My legs are still weak and hurt most all the time, but the Savella has aleast given me some relief in the upper body. I have tried Neurotin, Lyica and other, but the Savella has worked
best for me.
All these drugs work differently for each individual. I hope you find something to help you for this stuff is hell to live with, without something to help. God bless you with positive results.

briteyed1's picture

I have been taking Savella for 3 months now. It seems to help somewhat. Anyone who has Fibromyalgia knows, no pain completely goes away, but It seems to keep the pain rate to a 4-5, but we all don't take the same medicines, on top of this one. The weather plays a role too, with the pain, damp is the worse..I have other health issues , also.. I went from taking a vitamin every morning to 5 meds. in the morning and 7 at night. Every day is different. My pain is targeted in my neck, an 8-9 for pain level. It never stops hurting. I just use heating pad, and I am starting to excercize , maybe this will help. Hope I have helped. Sorry If I haven't...

enabler6's picture

Exercising in water seems to be the best for me, I am happy if it just helps me be more limber. I understand every day being different, stress and the weather hurt me the most. It seems like I don't bounce back much anymore when I hit a bad spot, lots of stress. I sleep with a heating pad every night, when I worked I had a heating pad on my back everyday. I just had carpal tunnel surgery and now it looks like I have lupus my mom has it, uncle and aunt with Rhuematoid Arthritis so not much room for not getting it. Lyrica, Nortriptyline and Cyclobenzaprine for my trigger points seem to help me get through most days along with percacet.

BettyThomsen's picture

HI please look up TheraSauna www.therasauna.com 1 888 729 7727 I have had Fibro for three years and was about to give up I was in so much pain they a friend had this Sauna in her home and had me use it in three weeks i was doing so much and back to my ole self that even my husband said he would buy me one.And that is not like him but I sit in it an hour a day and I feel so much better. you can call me if you want to talk I just want to share this with everyone. you know when you felt bad for so long and then feel better you just want others to feel better also 530 673 2784 Yuba City Ca

Kris31's picture

I have been suffering W/Fibromialgia for as long as I can remember... leg cramps so bad I want to cut them off :0( Im so mentally exhausted and the humiliation of feeling so debilitated and beaten down is killing me... I've always been very active, ate well and been in good health.. I couldn't figure out why I always felt horrible. Then my world crumbled when my ex almost killed me in front of our children. I have head trauma, seizures, 7 knee surgeries, staph infections and now Fibromialgia.. I have been on just about everything but Savella, Im on a combo of Neurontin and Lyrica... I notice that the Neurontin helps the best for me. Well, as best they can help. The pain in my legs are unbearable. I thought that pain meds. would help but they just take the edge off at times... I'm currently having a flair up, confined to my room, feeling lousy as if I had the flu. Constant stomach issues where I don't know weather I should sit on the pot or hug it... Embarrassing!!!!!! I've lost 20lbs. in the past 3 weeks... HELP!!!!

~KR!S~

enabler6's picture

I have had leg pains since I was 7 years old, told now (38) I have burcitis in my hips, had a cortisone shot and it took away the pain for about 9 months, hurt like hell for 3 days though. I use Nortryptiline for leg and foot pain, it helps a lot. I hate that I can't have my 6 year old cuddle with me or touch me when i have flare ups, my body is my worst enemy it seems. I can't stop gaining weight, but your way of losing is not good. I am on percacet and it stops me up i use to hug the toilet too, now I try to get as much fiber as I can to help the process.

Silenya29's picture

Have your doctor do a blood test for celiac disease, called a celiac panel. People with fibromyalgia/chronic fatigue are more likely to have this auto-immune disease, and often the treatment also greatly helps reduce fibro symptoms. Since you have the stomach and GI issues and wieght loss on top of the fibro... You should really get celiacs disease ruled out. I have all three myself.

Cindy

BettyThomsen's picture

Please look up TheraSauna FarInfrarred Health Sauna they might have one in your area at a health spa I have had Fibro for 3 years and know what you are going though up until 3 weeks ago I felt just like you then a friend told me about this Sauna and I have been using it everyday and I feel so much better I want to tell everyone about it I live in Yuba City CA call if you want 530 673 2784 or call the co .1 888 729 7727 Betty Thomsen

fibronotme's picture

I thought that I would jump in here and share my experience with fibro and rls. I have tried cymbalta that made me feel hung over. So was switched to Savella. So far, I can say that I did wake up feeling way better. Not stiff and barely moving as usual. I am having a small issue with being tired and a little bit of stomach cramping but I have to say that I am going to tell people that I know with this condition to try this med. I have not had to take any pain meds today at all. I still hurt but I can tolerate it. To the person that talked of pacing the living room as everyone else slept... have you talked to the doc? do you have RLS? you will need a different med for rls and I know that you suffer bad pain with it. There are times that I wished my legs gone! Feeling like I need to go the hospital the pain brings me to tears. I take a med for parkinsons for the rls and it again works pretty good. Knocks you on your butt but works. hope this helps someone

DeeJaye45's picture

I have found that different meds works differently for everyone as fibro symptoms are different for us all & also the symptoms can change too, which really is the pits. I have had to change meds so, so many times that I am just sick of meds. i have never been on Savella because it is contraindicated with another med I'm on for Bipolar disorder. If the mood swing with the depression from that won't get me the on from the fibro will!What Has actually worked the absolute best for me has been water exercise, moderate walking, massage, and Tai Chi.I'm just beginning the Tai Chi & don't know a whole lot about it but I enjoy it & it's helping with the stiffness & with balance problems. I like it better than Yoga because I don't have to get down on the floor & then have trouble getting back up :)

DJ

BettyThomsen's picture

Please if you have Fibromyalgia look up TheraSauna or call 1 888 729 7727 I have been using it for three weeks and feel so much better or call around to health spas in your area to see if they have one.I sit in one everyday for an hour and I feel great now. I want to share this with everyone because I have lived with Fibro for three years and I know all about the pain the being tired all the time and the brain fogs. If I can help just one person feel better Betty Thomsen Yuba City Ca 530 673 2784

Eye Em Okay's picture

Hi.

I was on Savella after I had 7 rounds of Electroconvulsive Therapy. The ECT gave me the worst head and jaw pain but it really worked with my depression. However, the Savella has a black box warning about suicidal thoughts and sure enough, I had them so they took me off that asap and put me on Lyrica and I'm up to 200mg twice a day in addition to my Zanaflex, Zoloft, Vicodin ES(Extra Strength), Trazodone, Xanax, and believe it or not, Adderall, now different doctors have different opinions on using the Adderall when you have chronic pain (because they say it can make pain worse since it heightens your senses), but in my case, the Adderall really fights the fatigue that comes with my Fibromyalgia. For the Adderall I'm on 20mg three times a day. The only thing that continuously hurts on me is my neck. I have a (slight) bulging C-5 disc from a car accident. I had epidural injections for my neck and they work for about 6 months but my new pain doctor is a real ass and won't do them for me, no clue why, but even his nurses tell me he has an attitude problem. So I suffer with my heating pad and hot showers. The warm really helps. But I'm a full-time student so I'm always on the go so any other suggestions for neck pain?

p_griffe's picture

I too have been on savilla. However, after reaching the top dose on the trial pack my doctor gave me it began doing the same thing that the Topomax did to me. I started feeling really euphoric and acted like I was high then the blurred vision came not to mention severe hot flashes and excessive sweating. Needless to say my dr. tried to cut the dosage down but after a little while on the lower dose these symptoms came right back. These medications work on me for a few weeks then boom here come the side effects. Last time I spoke with my dr. he began talking about sending me to a pain management clinic. Why???? Isn't that for folks whom are addicted to things?? I may be confused but i told him I wasn't willing to do that. He told me that there were several different options out there and after trying 2 of them he decides to do this? Anyone else out there had this problem with their dr? He is a rehumatologist.

DeeJaye45's picture

No, No...pain management clinics are not only for people who are addited to things...they are for ANYONE with CHRONIC PAIN, which is what fibro is, & it helps with possilble new ways to handle it. Lots of peole have misconceptions about what pain management is really all about. Hope you decide to look into it. Hope you find a GOOD one in your area. AND remember if you don't like what you find at one look for another. Sometimes you don't click with the DR.

DJ

p_griffe's picture

Thanks for the info and insight on the Pain management thing. I just dont understand why the doctor told me we had so many options and after trying 2 of them he decides to send me there? He is a rheumatologist and he is the one that prescribed the hydrocodone. If he didn't want me to take it he shouldn't have prescribed it. I am just so confused and I have an appt. with him on Wednesday of this week so we will see what happens from that.
Peggy

BettyThomsen's picture

Please look into TheraSauna they might have one in your area at a health club or spa it is a dry heat sauna please I felt just like all of you last month and I went to a b-day party last night and even fast dance I haven't done that in six years I've been all the Med you are on and still am but going to my Doc this month to see if I can get off them I feel that good Please give it a try

p_griffe's picture

Hey Betty I was wondering if you too are having problems with the fatigue??? If so is the sauna helping with that?
Peggy

DeeJaye45's picture

Betty, How much does it cost to go have these suana treatments you do. Did you have to get a health club membership? Or what? I know in my case we are quite poor, with my husband receiving unemployment, he gets his last check in mid Oct. And all I get is SSI, which is not the same as disability, it's just a supplemental type of income basically. So after his money is no longer coming we're literally in the poorhouse. So any medical type treatment not USUALLY covered is totally out. I believe many people might be in the same boat. Wondering about the cost.

DJ

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